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Monday, December 8, 2008

Our sweet Cadence (CUD)




I can't believe that Cadence is less than a week from turning one month old--crazy! She weighed in at 6lbs 2 oz and 19.6 inches at birth. She was 6lbs 9.5 oz and 20.5 inches at her 2 week check up. She is feeding well, sleeping well, very sweet when she's awake, and pretty much cries when she's hungry, has gas, or diaper needs changing. She has already adjusted to sleeping well with her crazy & loud sister running around the house (super nice).

What's new with her:

We are currently waiting to hear back from the midwives to see if Cadence's third newborn screen comes back with no problems. Her first one came out fine, while her second one came back saying she had CUD. The 'C' stands for carnitine. It would mean she is carnitine deficient, which translates into not being able to process trans fatty acids. It leads to hypoglycemia. It is imperative to find out in infancy, in order to treat it and avoid complications or serious problems. It is treatable through diet. For an infant, it would mean she would need to eat every 2-4 hours for the first six months of life. This would include nighttime and waking her up to feed. She would need to have a low-fat, high carbohydrate diet once solids came into the picture. She might have to be put on L-carnitine supplement (or medicine), in order to get the carnitine out of her body.

Non-CUD people process carnitine and it disposes through urine. Carnitine helps process fat into energy for the body. CUD means that people with it cannot turn fat into energy, which means that if they skip a meal their body doesn't go to the fat reserves (like people who don't have CUD) and they can go into metabolic distress. Cadence took her third test on Friday and we're waiting to hear back to see if she has it or not. We're praying that she doesn't and both very hopeful that she will have a clean bill of health.


7 comments:

Adrienne said...

cute girls. :)

The Willis Family said...

I can't believe how big she is getting already!!!

I really hope that her levels come back normal....for all of your sakes! When will you find out?!? Poor baby girl! I know how hard that will be to get up and nurse her every 2hrs at night! Emma-Kay was like that...up every 2-3hrs to nurse. It about killed me!!!!

I'm sure that your all getting ready for Christmas! It will be a really great one for you this year! Take care!!!!

a.a. said...

Veronica's finally holding Cadence!!!!! How cute is that?? Tell us about how that went!!!!!! :)

ps - I can't stop thinking about how adorable V was all day Saturday.... that smile.... :)

Anonymous said...
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Anonymous said...

I was there when Veronica was holding Cadence. Kamille should post all the "reject" photos. Several of Veronica crying and one or two of her trying to kick or push Cadence off her lap. We did get a few of her smiling while we bribed her with a cookie. There was also one of Ben with a gigantic head.
-Santa

Anonymous said...

They are such cute little girls! I just cannot believe that my little Veronica is almost 2 already. I know that she will be a great big sister to our beautiful little Cadence. Love Nana

Jenny said...

I'm praying for your sweet little Cadence; I'm hopeful for good news, too. Your girls are just BEAUTIFUL and I thoroughly enjoy all the pictures. Favorites would have to be "Mini-Plato", "Enamored w/cracker", and "Buckethead Ben".

Also eager to see if you'll have two luscious curly-headed girls.